What can I say? It has been a bad day, and I wish I could say something different or discuss another matter, but it is not possible.
Dr. Hedaya had the results of my tests. I called him dutifully at 2:00pm, the time when he takes calls. I was on the phone with him for about half an hour. He told me that my TSH is rocket high all of a sudden in both tests (one six hours after having taken the thyroid medication, the other one 24 hours after). He indicated that this could mean that my body is not absorbing the medication. I questioned the fact that two weeks ago the same TSH was down to 0.02, an ideal reading, and now all of a sudden in only one week it went up to unacceptable levels. The reference levels posted by the lab are 0.450 – 4.500, and I have 10.670 and 21.450! And even the posted levels are not correct, according to the latest studies. The maximum should be 2.00
He asked me to take my pulse. Guido could not find it (I could even joke about it at the time), so Dr. Hedaya told me to use the blood pressure monitor. I did, and we forgot about the pulse when we saw the blood pressure reading at 190/90. We took it again and it was 170/ 78. He told me to continue monitoring it. I did. It is normal again. Obviously, I was getting very nervous at the time.
What we need to do now is … more tests, yes, to determine the cause of the TSH results. Tomorrow I have to go to his office for a blood test which he wants me to have done there, and they will give me two more tests to do at home to check for possible intestinal dysfunction or food allergies.
I wish I could be more upbeat about this, but at this point I simply cannot. Maybe I am too close to what happened and still trying to digest it. Guido at first thought it could be a lab error, but when he saw the results they emailed me he accepted them. Whatever. I was hoping that this time things would be different. On Friday it will have been a year since I had surgery. Time to have all this behind. Instead, I am facing a new stage. My TSH has never ever been so high. The highest it has been was 4.01. And yet … Some sites advise not to be guided by TSH levels and to disregard them completely. Dr. Hedaya himself agreed about it last time we discussed it, but still he insists on paying attention to the results. They also advise to pay more attention to free T3, free T4, and reverse T3 – all of which are not normal either in the tests they did. The only thing that is normal is the iron level. Very confusing. What is happening? Let’s hope I get some answers soon. Please don’t ask me about it. I will write something about it as soon as I know, as I am doing now about today’s developments.
Guido got to see the doctor, and his ear is doing quite well now. At least, one of us is well. He went to Balducci’s and got dinner for us so we would not have to cook. I am still in shock…